tag:blogger.com,1999:blog-1620800315071767228.post2120525634412200496..comments2023-11-02T07:25:58.447-06:00Comments on Mending Hearts and Bending Knees: Potential Plane RideAmy Koslowskihttp://www.blogger.com/profile/15614092149616333620noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-1620800315071767228.post-15147373049585186972012-11-16T12:15:32.952-07:002012-11-16T12:15:32.952-07:00Hi Amy, I don't mean to step in on a medical e...Hi Amy, I don't mean to step in on a medical end of things, but have they been checking her for withdrawal signs, since her stay has been so prolonged? My son Liam(3yrs old - HLHS) was at SickKids for a long time after his Glenn and actually got addicted to Morphine and Ativan. He would get so incredibly agitated, shaky, sweaty and unable to be settled or sleep or want to eat. After getting his scheduled Morphine and Ativan, I would watch all the symptoms melt away as he became sedated, until a few hours later when the drugs started wearing off. It was quite frightening and just awful to watch every few hours, especially as he was so little (4 1/2 mos at the time). They originally thought digestive issues too and stopped his feeds, but then one nurse tested him for withdrawal symptoms (where they note signs of withdrawal every few hours - if the patient shows more than a certain number of combined symptoms, then that patient is considered addicted to the meds and in withdrawal). As soon as it became clear that was his struggle, they began weaning him off these two sedatives and gave him a new med (I think it was Ranitidine) to help with withdrawal symptoms. It was a long process, and it was so tough, but it was amazing to see the struggle over drugs decrease little by little every day. Not saying this is the issue, but I am seeing a lot of similarities in your writing. Maybe just an angle to pursue? <br />I will hold Hope and your family close to my heart today and am praying for you often - specifically for discernment and clarity concerning what the problem might be that is causing all of this. You have been an incredible blessing to me as I have followed and journeyed with you. My mommy heart aches most days when I read the road you are called to walk along, but I earnestly pray that you would continue putting your hope in God, that He may be glorified and use Hope to do mighty things in this world through her incredible testimony!<br />Rich blessings,<br />Lindsey J BleachAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1620800315071767228.post-26875225434606053742012-11-15T07:42:41.059-07:002012-11-15T07:42:41.059-07:00There are no words! I am sure that you are totall...There are no words! I am sure that you are totally exhausted, yet poor Hope! Medications make some of us very aggitated, and it is hard, I know esp. with morphine to settle. It does work on allowing pt. to relax with breathing but can make her constipated, aggitated, and very irritable?? Maybe if she could just tell you, she would say...please take me off of all of this stuff, and I will sleep!<br />Poor little thing! I feel for her......so will pray for her!<br />Wow...if only babies could talk, and let us know what is wrong. I am certain that you Amy know her better than anyone...she prob. does not have a feeding prob. if that is what your gut is telling you...do what your instincts tell you to do......!<br />Sorry that you are so tired, but glad you at least got 2 hr nap? Wow...just can't imagine what you guys are going through.....may God be your Strength today!!! May HE give Hope rest, and relaxation to sleep!Anonymousnoreply@blogger.com