tag:blogger.com,1999:blog-1620800315071767228.post3679885224948767712..comments2023-11-02T07:25:58.447-06:00Comments on Mending Hearts and Bending Knees: Blessings and BurdensAmy Koslowskihttp://www.blogger.com/profile/15614092149616333620noreply@blogger.comBlogger15125tag:blogger.com,1999:blog-1620800315071767228.post-52532141173557026262013-05-09T16:29:34.791-06:002013-05-09T16:29:34.791-06:00awesomeawesomeAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1620800315071767228.post-5918293874581685862013-05-09T16:28:44.168-06:002013-05-09T16:28:44.168-06:00Oh sweet Amy! Thank you for sharing outright - it ...Oh sweet Amy! Thank you for sharing outright - it helps in knowing how to pray. I'm sorry you have experienced so much pain! We believe in a God who does the impossible & does things for His glory. Each time I think of Hope's name, I feel hope. May God minister to you peace, strength, rest and joy like only He can. Praying for a transfer back to Calgary this weekend for you all! Hugs from a far.<br />Wendy - Norway.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1620800315071767228.post-7643946894631693972013-05-09T16:28:17.996-06:002013-05-09T16:28:17.996-06:00to confirm that the child is still wanting to live...to confirm that the child is still wanting to live and fight to survive, but it is unfortunate that he went about it the way he did rather than by just reading your blog and seeing all the wonderful pictures of Hope that show her so full of life! I hope and pray that you never have to face that question again. I pray that Hope will grow and thrive so much that any crazy doctor who even sees her for just a few minutes will be able to see the life in her and will be inspired to fight for her life as much as you do!!! Blessings to you all!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1620800315071767228.post-4085867758621893182013-04-26T08:49:02.742-06:002013-04-26T08:49:02.742-06:00I feel that I must play the devil's advocate a...I feel that I must play the devil's advocate a bit and say I can understand where the doctor is coming from a bit. While I fully support your and Shawn's decision to continue Hope's treatments, and I truly believe that she is still showing signs of wanting to live, there are other cases where the child does not have the same fight in them. It is good for the doctor to confirm that the child is still wanting to live and fight to survive, but it is unfortunate that he went about it the way he did rather than by just reading your blog and seeing all the wonderful pictures of Hope that show her so full of life! I hope and pray that you never have to face that question again. I pray that Hope will grow and thrive so much that any crazy doctor who even sees her for just a few minutes will be able to see the life in her and will be inspired to fight for her life as much as you do!!! Blessings to you all!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1620800315071767228.post-62693551011314006052013-04-26T06:24:37.769-06:002013-04-26T06:24:37.769-06:00Having dealt first-hand with the Ontario medical p...Having dealt first-hand with the Ontario medical profession over the past week, I can truly empathize with your anger and frustration. Just when you think things are moving in a positive direction, one seemingly uncaring person comes along and bursts your bubble. And when you are already fragile to the breaking point, that one person can make a huge difference in how your day proceeds from there. I experienced the same type of issues yesterday. I truly wanted to reach over and shake the doctor. I have to ask myself if they know (or even care) about the impact they are making on family members. Then add the patient to the mix! :( All Blessings, Amy. WE are all still on your side! Thoughts and prayers from Ontario.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1620800315071767228.post-12408003764201325172013-04-26T05:45:03.326-06:002013-04-26T05:45:03.326-06:00Amy,
I too am a follower of Hope's journey an...Amy,<br /><br />I too am a follower of Hope's journey and I have prayed for you and your family often. Please don't let the ignorance of people take away your hope for your daughter and family! God has a plan for Hope and I believe that he is the only one who knows what that is. She will be an image of his miracles!!! He has given so many small blessings to her because the big plan is ahead. She is a fighter and so is your family. Keep pushing for her. Shame on that doctor. God is in charge not him! God loves Hope and has given her an amazing family! He will provide the answers!!! Stay strong and know people are praying hard for all of you! Wishing only miracles and blessings to you! Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1620800315071767228.post-72160905297251393642013-04-25T18:38:05.013-06:002013-04-25T18:38:05.013-06:00Amy,
I have followed your families journey and ha...Amy, <br />I have followed your families journey and have senesed how God has been with yoy every step of the way. I can't imagine what you Shawn and Sadie have been through. This could prove to be devastating to any family, yet what I've read and what I see from your family is that you are open to what God has in store for your family and will accept His guidance. I can't imagine the toll that this has taken on your family over the last year and a bit but I do know that you have been an inspiration to a lot of people. I don't know what God has instore for you and your family but I do know that He loves you and has brought you this far. He has given you this trial to bear for some reason and I believe that God is using your situation to reach out to many other people. I pray that before next year we will read about Hope being released from hospital and being able to return home and live a normal life. God does love you and from all that I've read, you know that. Keep that in your heart when things beome unbearable. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1620800315071767228.post-47278115777546409482013-04-25T12:54:58.785-06:002013-04-25T12:54:58.785-06:00Oh sweet Amy! Thank you for sharing outright - it ...Oh sweet Amy! Thank you for sharing outright - it helps in knowing how to pray. I'm sorry you have experienced so much pain! We believe in a God who does the impossible & does things for His glory. Each time I think of Hope's name, I feel hope. May God minister to you peace, strength, rest and joy like only He can. Praying for a transfer back to Calgary this weekend for you all! Hugs from a far. <br />Wendy - Norway.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1620800315071767228.post-78310872421289082592013-04-25T10:57:29.323-06:002013-04-25T10:57:29.323-06:00WOW imagine a Dr. saying that. That reminds me of...WOW imagine a Dr. saying that. That reminds me of a Dr. after I woke up for a suicide attempt (I am a survivor of abuse and have many mental health issues because of it.) where I almost died a Dr. had the nerve to ask me "do you want me to treat you." The only reason I did the act was because I wasn't treated two weeks in a row asking for admission at the ER telling them what I would do and the third week I did it because no one would help me. All I could think is how unethical the question was. The same with the Dr. who talked to you. He was totally out of line, unethical and if he wanted to have that sort of conversation with you it could have been done in a totally different way. I am so sorry you had to go through that. Like me when the Dr. asked if I wanted to be treated and felt like my life wasn't worth anything to that Dr. because of what I had done. You were probably made to feel like all your efforts. All the efforts Hope has made and those of family and friends were negated. I am so sorry. Some Dr.'s have no clue...even those who are so called specialists...as to what they are saying and doing to their patients and their families. Please know there are a host of us out here who really listen to you when you write. Think often of you. Tell others about you. Pray for you and your family. WE CARE! WE HEAR YOU! God is sovereign and on his throne working all this through. I know this well because I am 41 and still alive...though I have been suicidal since I was between 10-12 years old. I have learned how to get help. And you need to remember all of us out here who care deeply for your family. Most of all God cares deeply for your family. Take good care of your self. Blessings.<br /><br />Naomi in OntarioThe Buttterfly Ganghttp://thebutterflygang.wordpress.com/2013/03/07/introduction-to-us/noreply@blogger.comtag:blogger.com,1999:blog-1620800315071767228.post-6359843259946590962013-04-25T08:27:47.211-06:002013-04-25T08:27:47.211-06:00That gets me so angry! Hope wants to live! She do...That gets me so angry! Hope wants to live! She doesn't want to give up! What is amazing about all this is that Hope won't have any memory of it. So even though it is horrifying for you to watch her suffer and go through so many treatments and tests, she's not going to remember any of it. She is nowhere near the point where you stop trying. I can understand this dr seeing patient after patient, seeing so much pain and suffering that he has turned a bit numb. But you put his comments out of his mind and keep fighting for your girl. God gave Hope you as a mom for a reason. Praying for you guys!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1620800315071767228.post-61247156755915697242013-04-25T08:26:50.688-06:002013-04-25T08:26:50.688-06:00It is so AMAZING that Hope is doing well with the ...It is so AMAZING that Hope is doing well with the varicies! <br /><br />I think it was out of line to say you and Shawn could move forward without Hope. That is not appropriate.<br /><br />Further, I agree with the post above regarding Hope's willingness to fight. That little girl has repeatedly proved people wrong.<br /><br />Physicians/Surgeons probably believe that Science and continued medical intervention are what are keeping Hope alive (and not God or her spirit). So continuing to intervene in a situation like this, probably feels meaningless and may even feel like cruelty to the doctor.<br /><br />I would like to believe the best, and say that the physician's comments reflect their ethical discomfort with a child suffering. <br /><br />Having said that, they need to work their ethical discomfort out within their surgical team, not on you!!!!! <br /><br />I will be praying for the surgical team, the doctor who is clearly struggling, and for you and Hope. Hope is a fighter, she wants to keep going, and I pray that God's plans are revealed. <br /><br /><br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1620800315071767228.post-84041235403002812642013-04-25T06:16:20.579-06:002013-04-25T06:16:20.579-06:00Wow, that doctor was out of line... I think some ...Wow, that doctor was out of line... I think some of those doctors suffer from a "god complex". how dare him give his personal opinion when you were vulnerable and alone before such a big meeting. Thankfully Hope's care isn't up to him. You are Hope's mother, you know her best, he is not seeing the whole picture but you are there through it all. praying for strength for you today and that your migraine goes away and for this doctor to know God's saving grace. <br /><br />One day at a time.... LeeAnnehttps://www.blogger.com/profile/12221478557622213885noreply@blogger.comtag:blogger.com,1999:blog-1620800315071767228.post-43044034197725798712013-04-25T05:38:40.942-06:002013-04-25T05:38:40.942-06:00Hi Amy...I work at Sick Kids in Toronto and I do n...Hi Amy...I work at Sick Kids in Toronto and I do not want to add additional complications to your already complicated situation, but have you considered asking for a second opinion regarding Hope's care from another facility? Just wondering if having fresh eyes and ears would be beneficial? Heather G:)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1620800315071767228.post-41393624649788023552013-04-24T21:56:15.863-06:002013-04-24T21:56:15.863-06:00I agree wholeheartedly with the above comment.
...I agree wholeheartedly with the above comment. <br /><br />As I have shared with you before, I also pray regularly that Hope would hear the voice of the Lord clearly, that she would listen to Him. That if He calls her home, she would go, knowing that He will lovingly care for and comfort the rest of her family. And that if He is calling her to remain with you that she would be STRONG and FIGHT and know that He is good in the midst of pain, good in the midst of suffering and that He will work it all for good. <br /><br />And...I see what the previous person posting sees. A courageous little fighter. :) Seems to me the Lord is with her like a mighty warrior. <br /><br />Ha ha, a speech from Aragorn near the end of the Lord of the Rings comes to mind. Paraphrased and edited: "A day may come when the courage of men fails...but it is NOT THIS DAY! This day we FIGHT!"<br /><br /><br />Karen Richardsonnoreply@blogger.comtag:blogger.com,1999:blog-1620800315071767228.post-57121400275745401962013-04-24T21:33:48.171-06:002013-04-24T21:33:48.171-06:00Amy,one thing that is so apparent to me as I have ...Amy,one thing that is so apparent to me as I have followed your journey with Hope since the beginning is that Hope proves over and over that she wants to be here. She is such a fighter and continues to fight every day. I'm so sorry that a professional would give you such a hurtful and devastating opinion but know that all of us who care for you and your family and pray daily (sometimes hourly) for Hope and for you and Shawn and Sadie BELIEVE that this is what God wants, this is what Hope wants and we BELIEVE that Hope will be home with you one day, playing in the backyard with her big sister. God, send your spirit tonight to comfort Amy, heal her and take her migraine away. Speak words of comfort to her Lord and help her to feel renewed with a new day. Grant her peace and bring her home to her family soon. In your holy name, lord, amen.Anonymousnoreply@blogger.com