Today was an awesome day. I don't think I have any bad news to report...that's a first!! Praise the Lord for a day full of good things. Today, I decided to keep Sadie with me. This was a huge blessing and was great for my little girl. It was my mom's last day in Calgary - this isn't very exciting and could be considered bad news I guess. We left for the hospital in the morning with Sadie and brought her to a program there called 'Emily's Backyard'. They will allow you to drop off your child to play if you have another child in the hospital and will keep them for 1.5 hours. Sadie loved it and walked in without a thought and didn't look back.
During morning rounds we found out that Hope was moving to the ward! At 3 pm, they moved her up to the second floor to start the next step in getting her ready to come home. At 7 pm, they took her off high flow oxygen and she did so well that she's no longer on any breathing aids. They also removed her NG tube that was suctioning from her stomach. Now the only tube on Hope's face is her NJ tube. Tomorrow they hope to pull it up and make it an NG tube. This means that Hope will receive food to her stomach for the first time in her life! Today is also the first time in her life that she hasn't been in the Intensive Care...we are so thankful!
Our new challenge will be living on the ward. Now that Hope has been moved upstairs they encourage parents to room-in with their child. They have proven that children recover 33% faster if their parents live with them at the hospital. As a result, on Sunday night I will be moving into the ward with Hope and learning how to care for her. Shawn's parents are going to move into our house to help him with Sadie as he'll be going to work each day. As you can imagine, life is still not going to be 'normal' for us for quite some time. Please continue to pray for us as we wait to come home with our little girl. The earliest we can leave the hospital is May 26th, as that is the day she'll finish her IV antibiotics. If we have feeding issues, we could be there a lot longer. Please pray that Hope is a star when it comes to eating.
Thank you to everyone that has been helping us out, life has been full of change and we wouldn't still be standing without the support we have around us.
Yea!!! God is so good and you have a little fighter. We will continue to pray and also be sure to thank God for what He has already accomplished!
ReplyDeleteMy brother was in the hospital for 6 weeks when I was 3, and I absolutely loved Emily's backyard (or so my mom says, I can't remember much!). Sadie will have a blast :)
ReplyDelete- Leah
What awesome news!! I remember how great it was to get to sleep in the same room as Landon. Finally getting to change his diapers and giving him all his feedings made me feel like a mommy. You are one step closer to bringing your lil darling home! Praying for you. God is so faithful and He will continue to see you through. Don't get discouraged when a good day leads right into a horrible one... it just seems like life at the hospital is one step forward two steps back, but everyday is a victory for Hope and your family. Happy Mothers Day Amy!!
ReplyDeleteSo happy for you. Praise God. He is sooo good.
ReplyDeleteWhat a great early Mother's Day gift! I can only imagine how you feel! You are truly blessed to have such great family to help you out. I'm excited for you to be able to more in with Hope. That's really awesome. Praying that mommy's love and the hands of God will make the rest of Hope's time in the hospital a speedy process! Happy Mother's Day!!!
ReplyDeleteAmazing news!!! So happy for you to transition into caring for Hope and rooming in with her, hearing her night time noises, etc. continuing to pray and look forward to more good news! Praying particularly for eating and digestion for miss Hope :). - Annie, Paul and Miles
ReplyDeleteWonderful news Amy that you have found a solution for Sadie to give her some stability during your transition with hope. Hope will continue to improve every day now :)
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