Hope remains oxygen free! It's been over 24 hours now and she is doing so well. After some issues with vomiting yesterday, Hope's NG feeds have been dropped to 11mls an hour. Her NJ feeds are up to 6mls an hour. That gives us a total of 17mls an hour, our final goal is 24mls. Hope will reach this goal at 10pm tomorrow, if all goes well. That means, we could be finished with TPN (liquid nutrients) by tomorrow night! The doctors plan to leave the PICC in for another 24 hours after the TPN finishes and hope to pull the line on Friday. I can hardly believe this might happen, but am hoping it does.
Today I asked the cardiologist what we needed to accomplish to get out of the hospital. Once Hope is receiving 11mls by NG and 13mls by NJ, she'll be at full feeds. Once this happens, we'll slowly begin to move the NJ feeds into NG feeds. Once Hope is receiving all 24mls by NG feeds, she can go home! This could take some time as we have really struggled with feeding issues. Please pray that Hope will surprise us and do amazingly with her feeds. We are so excited to one day have her home and are anxious for this to happen.
All of Hope's blood tests came back negative! They have no explanation for the fevers, but we are off isolation. I'm praying the fevers stop and we did not somehow miss something with Miss Hope. Thank you all for continuing to pray for a miracle, she continues to amaze the world each day with her steps forward. Please be praying for the clot on the end of the PICC line, this could be a major issue and we are praying that God would take away the risk.
There are so many of us here in Chicago praying so hard for all of you to be at home on Christmas!! We are thinking about you all the time!!! Hugs and kisses from all of your family here in Illinois.
ReplyDeleteWe will keep praying for Hope and your family. Her progress is truly a miracle and shows she is wrapped in God's arms.
ReplyDeleteThankyou for truly glorifying Christ through your blog!! You can truly see Him through your updates. When Shaun+Naomi came to Zambia they told us about little Hope+Sadie at our Mommy's group, we started to pray for you and your family! Since than we have just returned to Canada for some medical issues of our own and took the opportunity to check out your blog!! We are praying for you as a family today;little Hope and Sadie! May you continue to see His hand in big and small ways in this day!
ReplyDeleteFeeling the Hope Happiness today:) Trusting the Lord for answered prayers for Christmas.... he is enough.
ReplyDeleteO Lord, you are the God of the unexpected. Just when we think we have a clear idea where things are heading, you appear and intervene in the most astonishing and creative ways. When this happens, we are reminded again that our field of vision is so limited that we can only see as far as the first bend in the road ahead. You have said that our faith in you is the assurance of things hoped for, the conviction of things not seen. When we hope in you, we hope in what we do not see, and we pray that we will persevere in waiting eagerly for the realization of all that you have promised. To trust in what you call us to do and to obey your direction often does not make sense to our eyes. Nevertheless, having come to faith in Christ Jesus, we know that we have no other viable option than to echo Mary's words: "I am the Lord's servant. May your word to me be fulfilled." We humbly pray that we will be able to complete whatever task you give to us. In Jesus' name we pray. Amen.
ReplyDeleteWhenever I think of your little family I will pray for you. May God richly bless you all on your journey...nice hear of the good report.
ReplyDeleteWe are praying for Hope and your family. She is truly a miracle and there is nothing more I want for Christmas than to read an update that Hope's PICC line was pulled and there was NO blood clot! God has his arms wrapped around her as he uses her to teach us all a lesson in faith. My family and I are praying for the clot to disappear by tomorrow. God bless you all with continued strength, courage and faith. Dear Lord, especially bless baby Hope and heal her completely from the top of her head to the tips of her toes, we ask this in your blessed name. Amen.
ReplyDeleteGod is good!
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