This week I have been reminded of how sick and twisted this sinful world is. Many of you have likely heard of and been following the disappearance and murder of Tim Bosma. I have finally understood how people that do not know us well, could care so deeply for our family. Each morning I would look for updates on my cell phone, often before getting out of bed. I have prayed throughout the day, constantly for this family. Our world is sinful and fallen, we will never live in a world that is truly safe until we reach Heaven.
Hope has been decently stable. Yesterday I saw for the first time how dependent she's become on her heart meds. She needed a large volume of blood drawn for some transplant blood work and they decided it wouldn't be easy to get off her body. In an effort to save her from being poked multiple times, they agreed to take it off her line. Something that would never have happened if the doctor from Edmonton wasn't here for the week. The heart med is only effective while it's running and disappears from the body in seconds. It was stopped for a total of 90 seconds at most. In that short time, Hope's heart rate went extremely high, her oxygen levels dropped and she began breathing very quickly. Lord, her little heart is fighting to keep going, but she needs a new one.
Hope was beyond miserable today. She woke up for the day at 5am and could not fall asleep for a decent nap. Assuming she was teething, I kept looking at her red gums on the bottom and looked for new teeth. After hours, I finally realized a tooth had broken through on the top. Hope has finally gotten another tooth, her third, after 5 long months with no new teeth. I'm thankful it's a normal problem for once and not a major issue.
Thank you for continuing to pray for us all.