Today was moving day! And that's why it's me, Amy's mom, who is writing this blog!!......
The move has gone well and Amy, Shawn and Sadie are in their new house. They may be surrounded by boxes, but the beds are made up and they can crawl in bed tonight knowing that the biggest job is done! Many thanks to their awesome friends who have helped in various ways....packing, unpacking, providing meals, keeping Sadie entertained, cuddling Hope and just being supportive and generous with their time and their love. What a blessing you have been!
Hope was officially listed for transplant on Wednesday. And now, the wait begins. The doctors have told Amy and Shawn that the best chance for Hope would be to get a new heart quickly. They have talked to them about other options to give her more time, should Hope's heart continue to fail, but because of Hope's complicated anatomy, these options are not ideal for her and some should not even be considered. For instance, ecmo, the heart/lung assistance machine. Because of Hope's clot in her neck, the doctors feel that by the time they were able to find a viable vein to use to place the cannula, too much time would have elapsed and Hope would be at risk for brain damage. The Berlin heart is an option (mechanical heart) but this could also be very risky for Hope due to her tendency to clot. A clot while on the Berlin heart could result in a stroke for her. All in all, the ideal scenario would be for Hope to get a new heart as soon as possible. And so....this is what we are praying for!
Ever since we got the news that Hope would be born with a severe heart defect, people have been praying for her and her family. Many of you reading this blog right now have been faithfully and earnestly praying throughout this long and difficult journey. Today, the stats for the blog show that this site has been visited over one million times and people in 65 different countries have read the blog at some point since it was created. We believe, without a doubt that Hope would not be here today, if not for the army of prayer warriors standing in the gap for her. She has overcome so much this past year through God's miraculous power! We give Him ALL the glory for what HE has done in this little girl's life and we humbly ask Him to continue to spare her life and give her the new heart that she so desperately needs.