Thursday 26 January 2012

Blessings that are hard to believe

We are truly blessed.  I've been reflecting on that over the last few weeks and can't get over how blessed we are.  I think that many of us have the impression that when good things happen in our lives, God is blessing us.  I now realize that God blesses us when bad things are happening in our lives, sometimes in a greater way.  This experience has been more positive in our lives than it has been negative so far.  We believe that the world is evil and that people are heartless, the news reminds us of this every night.  Every once in a while a story appears of someone who did something nice and we're all shocked.  It happens constantly, I'm truly blown away.  God has taken something terrible in our lives and used it to make us sit back and truly enjoy life.  I see more value in all of my relationships, I see my marriage and my daughter in a new light.  I even have a deeper passion for Bliss cupcakes...is that even possible?

After Hope was diagnosed we found out about 'Sisters By Heart', they are a support group for parents of children with HLHS.  They sent us a care package of supplies that we would need in the NICU for Hope and offered a lot of advice for the road ahead.  Many of the things in the package were donated by parents who had lost their children to HLHS.  I follow their blog and was touched to see a blog about a mom who lost her little boy, Jack Ryan, to HLHS in 2008.  She has made and donated blankets for the NICU that are the perfect size.  Hope was a lucky recipient of one of her blankets and after reading her story, I hold that blanket as a more precious gift.  We also received Baby Legs, these are leg warmers for Hope to keep her warm while she can't have pants or sleepers on.  The company http://www.babylegs.com donated these to Sisters By Heart as well.  I emailed them to thank them for being so generous and caring about the organization.  They emailed back and said that they have sent me a package with some larger ones for Hope's future surgeries!  Seriously?  I am amazed that companies care about our baby and don't even know us at all.

Another amazing gift came from Paper Blanks.  If you have never used one of their journals, I recommend you get over to Chapters and pick one up.  These journals have nice thick pages, lay flat so you can write on both sides and are usually very beautiful to look at (www.paperblanks.com).  I find that investing in a nice journal, gives me the desire to sit down and write.  After journaling one night, I emailed them and thanked them for making such an awesome product that was truly a form of therapy to me currently.  A lady from the company emailed me back and simply said that they were glad I enjoyed their product and wanted to help me continue in my journaling by sending me 3 of them in the mail!!  Really?  I thought only Ellen or Oprah did this sort of thing.  Now I can sit at the Fairmont in Jasper in 3 weeks and enjoy journaling, I have lots of empty pages to fill.  It almost feels like God has rolled out a red carpet, I'm nothing special to the world and yet I seem to be treated as though I have a gift of some kind.

Getting our mail has become an enjoyable activity.  I have always loved mail and have a few friends that I continue to correspond by snail mail with on a regular basis.  Since Hope's diagnosis, the mail has become more exciting and I am surprised at times by the people who take the time to write an encouraging word and send it our way.  What a blessing to see the return address of someone you haven't seen in years, it is with true joy that I take in each one of those cards.  They are precious to me and I keep them so that one day, Hope will know how loved she is, even before she was born.  Friends from afar have sent gift cards to provide us with dinner when they weren't able to make something.  Shawn and I use these cards to go on dates and allow Sadie's grandparents to have a date with her!  It's truly amazing to see the creativity and thought that has gone into some of the things that have shown up on our doorstep, all of them precious and completely valued.

Thank you has truly lost it's value, it seems like such an easy thing to say and we hear it from so many people that it has lost its effect.  I don't know how to express in words how completely humbled and truly thankful we are to the thoughtfulness of so many of you.  It means so much and as my mom likes to tell me, "it's God putting little post-it notes of encouragement into my day".  It truly is, when something like this happens, it changes the course and attitude of my entire day, even my week.  Thank you for providing us with such precious gifts; words of encouragement, gas, food, toys for Sadie, clothes for Hope and even a relaxing massage for me!  You all know who you are, but I wanted to tell you all again, how much we need you and are so thankful for you.

Two weeks from today we'll be in Edmonton to meet with all the doctors, we look forward to our questions being answered.  We also dread the reality of our situation sinking in further and facing a truth that is just around the corner now.  We know that we are not alone, the people that surround us are incredible and there are people who read this blog that I may never meet.  For each of you, we are thankful, we can only hope to meet you one day and introduce you to the little girl that stole a piece of your heart as we fought to keep hers beating.
The first time we saw Hope, before we knew about the struggles that she would face.

8 comments:

  1. Amy, I have heard through Ailsa and Frank of your little Hope's diagnosis. Although we have met you only a few times, I have been thinking of you and your family's journey on a daily basis. I hope you don't mind if I follow your blog. Your honesty is beautiful. Many prayers for you all.

    Jen (McGurk's Sister-in-law)

    ReplyDelete
    Replies
    1. Of course you can follow along Jen! We're more than happy to have you reading with us and keeping updated on little Hope.

      Delete
  2. Amy, I am a friend of you cousin Megan F from way back. I found your blog via her links on facebook and have been praying for you all. The tangible grace of God that you write about in this post really touched me. What special little ways He's showing His love to your family. Thank you for sharing.

    ReplyDelete
  3. Amy, thank you for this wonderful post. We're so pleased you like the care package and items inside. We've been so fortunate to have support of donors and companies who believe in our mission. We'll keep posted on Hope's journey and send you lots of love. Please know that we're here for questions, comments, concerns, etc. Heart hugs!

    ReplyDelete
  4. Amy, I hope it's ok that we shared this post with BabyLegs - it was just so beautifully written. I had no idea they were sending you more - how fantastic. Also, so happy to see you got our package. I'd been meaning to check in to make sure - so glad it found its way there!

    Heart Hugs,
    Amy

    ReplyDelete
    Replies
    1. Of course, I got an email from Baby Legs today after they read the post. They seem like such a great company!

      Delete
  5. Amy,
    I am not sure how to email you? One of my dear friends sent me the link to your Blog. I wanted to let you know, in November 2007, my little girl was diagnosed with Critical Aortic Stenosis. The local doctors did not give us much hope. My husband and I (along with many others) prayed for a miracle. We found Boston and we found HOPE! My daughter had Fetal Heart Surgery. She would have been born HLHS. She has since had 3 open heart surgeries, not the same as the HLHS children (hers were to replace valves). We have met so many HLHS families. My daughter will turn 4 next month. Like your family, we view her as such a blessing!!! We do not allow her heart defect to define her. Sure, there will be many bumps in the road. There will be hard days. Hold tight to your faith and love your family the best you can and focus on the positives. For us, that is what gets us through!!! We will be praying for Baby Hope!!! Please feel free to contact me with any questions or comments you may have!!!

    ReplyDelete
  6. Praying for your little girl and that God will continue to bless your family. I'm not sure if you have seen it before but Matt from the band Santus Real has a son with HLHS. Its a pretty amazing journey they have been through. You can check it out at bowensheart.com

    ReplyDelete