I'm beginning to wonder if insurance companies are borderline evil. I wanted to give Shawn's insurance company the benefit of the doubt and believe that they were working for our best interest. We spoke to the nurse that did our assessment on contract for the insurance company. She told us that they had recommended nursing care for us and had even begun hiring someone on our behalf. The insurance company decided against their recommendation and proceeded to tell us something different. Shawn was told that the nursing company had decided the care was not necessary. Shawn continued his discussion with them on Friday morning but never heard back from them. At this point, it appears they're going to drag their heals as long as possible and look for more reasons to reject us. This is all so frustrating and makes us really annoyed. Every morning that we begin our day exhausted, we like to blame it on the insurance company and not Hope! Sunlife has a choice, Hope didn't choose this for her life.
Hope is doing pretty well, she's tolerating her feeds well and is continuing to gain weight...slowly! We celebrate every gram, it's all better than weight loss. Hope can be pretty fussy at times in the day and difficult to settle. Many times we pull air out of her feeding tube and find that she'll settle down. There are days that are overwhelming with the two girls, but I try to use the evenings to recoup before starting again.
We were accepted by Tiny Light Foundation (www.thetinylight.com) and will have our family photos done on Sunday. It is a group of professional photographers that volunteer their time for families that have a hard time going to a studio for family photos. We want to get some pictures of Hope, but aren't able to take her into a studio that is not disinfected and safe for her. This will be a huge blessing for us and we're looking forward to posting some of the pictures for you all to see. Hope is still very tiny, but her features are changing as she gets older.
Thank you for continuing to pray for us and lifting up our family. A specific prayer need today, Sadie has a hacking cough. We spoke to the cardiology department about moving Sadie out of the house, but they told us that it's too late now that her symptoms are showing. They don't feel she's contagious any longer and have us just keeping a close eye on Hope. Please pray that Hope doesn't get Sadie's cold and that we're able to get Sadie better quickly!