Thursday, 4 April 2013

Happy 1st Birthday Hope!

This day has finally arrived.  It has not come easily or without pain, but today we celebrate the miracle of Hope.  We praise God today for carrying Hope and our family through this year.  I have yet to see Hope this morning, but I'm already so excited!  

Hope has not thrown up, gagged or retched since the formula was stopped and the breast milk was started.  Clearly her problem is with the formula and not the potassium.  She is a lot happier and is feeling more like herself, although we are still lacking in the smile department.  We were able to get a couple teaspoons of pureed meat into her yesterday and hope she will continue eating it today.  

After the vomiting stopped and the diarrhea decreased, Hope had way more fluid on board and her low dose of diuretics was no longer enough.  Last night the fluid in her lungs must have shifted and her oxygen level plummeted.  She spent some time on 10 litres of oxygen to keep her going!  She was able to get back down to 1 litre and given a larger dose of diuretics to help her get the fluid off of her lungs.  Stopping the vomiting and diarrhea was good, we didn't anticipate how quickly it would happen and the fluid it would leave in her little body.  Hopefully we can balance things out today and get her off oxygen completely!

Sadie and I are heading over to the hospital to pick up Hope for her big day and bring her home.  The hospital has been amazing to work hard to be sure we can have her with us for today.  I'll try to update tonight on her big day!

28 comments:

  1. Sending our special birthday blessings to Hope on this very special day!!

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  2. Happy Birthday Hope!! I haven't commented before but have been following your story for quite some time. I read every update and have been praying continuously for Hope!! I celebrate every victory and cry at every defeat!! I found my way here via Kendall Manz!!
    I will continue to pray that God will heal her and you can bring her home for good!! Until then, what an awesome day this must be for you!!! I hope it's wonderful!! :)
    Vicki Moore

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  3. I am so excited for this day!!! For all of you, my heart is overflowing with thankfulness that today is here. Know that we are celebrating many miles away. Love to all :)

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  4. Happy Birthday to Hope and the family this is a BIG day.

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  5. Happy Birthday Hope! So thankful for how your first year has changed my life, and I don't even know your family! You are loved by so many, and we are celebrating you today.

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  6. Happy Birthday to a beautiful little girl

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  7. Hi Amy, I've been praying for your family as soon as our mutual friend Jen Rottier posted it on facebook. My daughter was born 2 days after Hope,(they even look a little alike!) so I've always had a special place in my heart for her (and you). I appreciate your honesty and candidness in your posts, and can see without even knowing you, how God is working in your life. Today I am praying for a special day for your family, with lots of laughter and joy. God bless you all!! And happy birthday sweet Hope!

    -Kathleen

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  8. Ah, happy birthday sweet Hope! We celebrate you, and ask God for the gift of healing and strength... life and wholeness. May today be a day FULL of celebration and hope. Loads of love and toasts to many more birthdays to come!

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  9. Have a wonderful Day celebrating a special little girl! I pray that you all will enjoy this day that God would bless you all beyond your expectations today! Praise God for reaching this day! Happy Birthday Hope!

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  10. My oldest son shares a birthday with Hope. Tonight, as we pray a blessing on him, we will pray one on Hope as well. Happy birthday to a very special little girl!

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  11. Happy Birthday Hope! I have been thinking about you all lots and praying for you. I hope being home feels so good. Amy, you are so loved and so strong and such an inspiration. xoxox Michelle

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  12. Happy Birthday Hope! And blessings to the rest of the family.

    Naomi in ON

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  13. I wish Hope, you and your family and day full of joy as you celebreate her birthday! :)

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  14. Happy Birthday to a very special wee lass, have a great day with all the family, continuing to pray for you all

    Anne xxxx (from Scotland)

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  15. Happy Birthday Hope!!

    All our love,
    Eric and Karen

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  16. Happy First Birthday Hope.

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  17. Happy Birthday Baby Hope! I look forward to reading this blog every day and Baby Hope definately has a special place in my heart. Thank you for sharing your journey!!

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  18. Dianne Johnson4 April 2013 at 18:21

    Happy 1st Birthday Hope!! May God bless you & your family on this wonderful day. Amy wishing you all a day of love & sunshine with many happy memories. May God be with you all through the years and keep working on young Hope. What a beautiful inspiration you are to this world & Hope all have said it Sweetie ... we are so happy that you are here to celebrate this special day. Keep up the strength and win the fight. Hope you all had a wonderful Birthday with Hope and that Hope had the special opportunity of making her mess with her very first birthday cake. Hugs to you all. May God keep touching each of you with his loving ways.

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  19. Happy Birthday Hope! and also to your family. Wishing you all a wonderful day of God's blessings and celebration. I will continue to pray for all of you for strength and wisdom.

    Liz (in Ontario)

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  20. Happy Birthday Hope!!! God bless you today on your birthday and everyday!!! You are such a blessing to so many!!! Lots of prayers and love!!!

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  21. Elly age 11 ( In Lacombe)4 April 2013 at 20:36

    Happy birthday Hope!!!!! Do you think hope will go home soon?

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  22. Reading the last few blogs has moved me to tears of happiness that Hope is able to eat some and come home for her Birthday (if she was able :) I understand being afraid to believe she'll actually be well but pray this is the beginning. I would love to come to her baby dedication because I feel so connected with you but need to be home caring for my bedridden daughter. I will be with you in spirit as you bring your precious Hope formally to God who has held her and you during this excruciatingly difficult year.

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  23. Karen Richardson4 April 2013 at 21:24

    "Come, thou fount of every blessing, tune my heart to sing thy grace. Streams of mercy, never ceasing, call for songs of loudest praise." (!!!!)

    Happpy Birthday little Hope. You have brought this great Hope to many:

    John 1:5 "The light shines in the darkness, and the darkness has not overcome it."

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  24. My heart is full of happiness. Thanks Lord. Happy birthday, Hope!

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  25. I've been following your story through a friend of mine, and been praying for you all. Happy Birthday to your little girl! How wonderful!

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  26. A belated Happy 1st Birthday to Hope. What a year! Nursey posted several beautiful pictures on facebook this past week. What a cutie!! Praying that all is on an upswing and the rest of the years are smooth sailing. :)

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