Thursday 4 October 2012

6 Months Old!!

Today is a milestone worth celebrating in Hope's life, she's 6 months old!  As the doctors continually remind us of the fragility of Hope's life, I decided we needed to celebrate today.  When Sadie was a baby, I took pictures of her every month with signs to say how old she was.  Hope was not doing well and was intubated on her 1 month birthday.  It didn't feel like the time to make a sign and take a picture.  I never got back into it and have missed the first 5 months.  No longer!  I will celebrate every day and each month with this little girl.  I picked up cupcakes for the staff today and made sure that everyone knew Hope was 6 months old today!  They even got her a little princess wand.

Hope did well through the night and appears to have full and equal function on both sides of her body.  They have decided not to do an MRI at this point.  If she starts to show signs of a stroke again, they'll do an MRI at that point.  Hope's colour became poor again this afternoon and she's been a bit sweaty all day.  They've decided to do an echo tomorrow and make sure her heart function is strong before the long weekend.

Hope will stay in ICE again tonight and they'll make a decision about where to move her tomorrow.  We feel more relaxed with Hope here and are fine for her to stay as long as they feel it's necessary.

Please continue to pray for Hope's medical team as they look for answers to some of the weird things she's doing.  Please also pray for our family as we balance our lives while my mom is back in the USA.  We really appreciate having someone in the room each morning to wake up with Sadie.  We know that my dad misses her like crazy though and are happy to share.  Thankfully our friends are here as well and have been an incredible support with Sadie during the day.  This would not be possible without the support we've received and we are truly thankful.



17 comments:

  1. Happy birthday beautiful girl!
    Love from far away -
    The Manz Family

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  2. Happy 6 months Hope!!! Beautiful cupcakes. You have over come so much!!! Keep fighting Hope and family!! We will keep praying.

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  3. Happy half birthday to a strong soul who has come to such an incredible family. You are a beautiful and precious inspiration!

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  4. Happy Birthday Sweet Little Princess Hope. You are love by so many near and far. Keep fighting litlle one. You, your mommy sister and daddy are in our prayers daily.
    Kimberley

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  5. Happy half birthday, Hope! You go through more in a day than most ever will. What a strong, sweet fighter you are!! <3

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  6. so precious - Happy 6 months Hope!!!! God Bless you!

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  7. What a bonnie wee lass she is, hope you had a great 6 month birthday loves, hugs kisses from Scotland xxxxxxx

    Anne

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  8. Happy half birthday Hope!! God is holding you close!!

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  9. Happy birthday to sweet Hope! Praying praying praying. - Annie in TO

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  10. You bring tears to my eyes...praying for your family and your beautiful little girl every day. happy 1/2 birthday little girl. love from wyoming ont.

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  11. Happy Birthday darling girl! What a lovely idea to celebrate Hope! We will be praying every day for this sweet little one and her wonderful family.

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  12. Happy Birthday Hope, from South Africa. We are praying for you.

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  13. Just wanted to say you are an INCREDIBLE mother!!
    Praying for Hope in Australia, and through all of this being inspired in our own life! We pray that you are finding yourselves in the everlasting well daily!

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  14. I am praying for Hope. I am praying for you. I am praying for your family. May the new mercies of each day flood the deepest part of you with courage and patience and peace. You are all being held by mighty arms.

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  15. Happy half birthday baby Hope!

    Amy you are amazing and Sadie and Hope should be very proud to call you mom.

    Lifting you all in prayer.......Sandra & Sarah

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  16. Thanks for sharing your celebration photos! You were so right to celebrate Hope's well-earned birthday! My daughter and I prayed for Hope last night as she went to bed. I think of you often and pray for healing, peace, blessings, wisdom and strength. Blessings on you and your family.

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  17. Happy birthday hope! you are a beautiful and strong little girl! We are praying for you!

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