Monday, 19 November 2012

Our Drama has No End!

I cannot even believe that our life continues to collect drama.  Seriously?!?!  Last night was the worst night I've ever had with Hope.  At 4:30 am I finally caved and allowed them to give her Morphine so I wouldn't lose my mind.  Hope slept for 3 hours, and then got up for the day.  As a result, I am functioning on only 3 hours of sleep as well.  Not a pretty sight.

At 11am this morning, the nurse discovered that Hope had a high fever.  She also had a poop that was suspicious looking.  They sent it off for tests and found that it was full of blood.  We were sent down soon after for an X-ray and it didn't look great.  Hope's bowel walls are inflamed and swollen, and it looks as though she may have an infection in her tummy.

They had originally decided not to start antibiotics and to up her feeds a bit and see how she did.  They wanted to see if she would react in order to diagnose NEC (necrotizing enterocolitis).  If she does have it, it will set us back a lot and will almost guarantee Christmas in the hospital for our family.  Hope's temperature was just checked once again, and it's even higher.  As a result, they are changing the plan and will start her on a strong antibiotic right away.

Please pray that whatever is causing Hope's issues will quickly reveal itself.  The doctors are looking for direction as they treat Hope's symptoms, but are still unsure of an official diagnosis.  Hope continues to be miserable, and I am in deep fear of having another night like last night.  Please pray that she will be able to settle and get a good sleep.  I think it would be good for both of us!

Thank you for continuing to care, I know our drama appears to have no end.


  1. so sorry :(... praying God's peace and real physical rest for you tonight. may her digestive system heal up and be restored. may the doctors have supernatural wisdom for each step, including helping Hope sleep so her body can heal. praying and trusting our Abba will meet your every need. love and prayers from toronto - annie

  2. Maybe due to the drama of her early life, Hope's teenage years will be calm?!? I'll pray for that. And for answers with solutions.

  3. Oh Amy, my heart feels heavy thinking about the possibility of NEC and how draining the process is to go through. We've been through this twice and it takes a lot out of everyone. Praying for protection over Hope's insides - that this infection will not spread or damage her gut any further. I pray that she will handle not being allowed to eat during the treatment phase and that she would be settled long enough to catch some deep sleep. I pray for you to receive an incredible strength, as you try to offer some comfort to your precious little girl. And I pray for a whole lot of renewed grace, to be showered upon you folks each morning, and throughout your days and nights fighting through whatever it end up being. I pray once again for clarity and discernment for you and for the medical team, who try to come up with the best plan for Hope. Asking God for his incredible hand of protection over Hope as you continue in this journey. Will be praying earnestly in these days, weeks, months.
    Lindsey J Bleach

  4. You are such a beautiful and loving mama. An inspiration. And you are loved and being prayed over. You can do it, through God, you can do it!!!

    Praying that God sustains Hope and you, fills you both with strength, peace and comfort.

    Lots of love and prayers for Hope and you! Thinking of you both daily!

    - A friend of a your sisters

  5. Hello Amy,

    I pray that Hope and you find peace, strength and rest. Today and in the coming days. May God hold you both in this Journey. We will keep praying for you and your family during this time. Asking the Lord to give speedy answers and solutions so that Hope may heal.

    Friend of Kristin's and Mom of a heart patient.