Monday, 5 November 2012

Sitting up...with help

Last night was Hope's last enoxaparin (blood thinner) injection before her surgery.  They have now switched her to a less intense blood thinner to keep her bleeding down in the OR.  That was started this morning through Hope's PICC line.  No other changes were made to her care and I don't have much to update on.

Tomorrow Hope will go through a series of tests to prepare her for the surgery.  She'll have an echo, blood work, ECG and X-ray.  We still have not received a time for Wednesday and likely will not until Tuesday night.  We would appreciate your prayers as patience is tough at the end.  If Hope is taken on Wednesday, we'll do alright.  But the chances of a delay in surgery are very possible.  There are a lot of logistics involved in having an open heart surgery.  If there is not a bed available in the PICU, the surgery will be cancelled.  We are praying that this will not happen and Hope will be taken on time and not delayed for days, or weeks!

I had Hope sitting up in a Bumbo chair today.  She is holding up her head and playing with toys, she's grown so much in the last few months.  It's exciting to see her develop and grow in the midst of so many set backs.

Tomorrow will be a tough day, it will be hard not to think about the surgery.  Please continue to lift up our family in prayer.


  1. Love the pic of you with Hope. We will be praying for you all -- especially in the next couple of days. Thanks for keeping us posted.
    "He who dwells in the secret place of the Most High shall abide under the shadow of the Almighty. I will say of the LORD, 'He is my refuge and my fortress; My God, in Him I will trust.'" Psalm 91:l,2

  2. Hey Amy, knowing Hope's previous history with reactions to anesthetics, I have been wondering, can they give her a preventative dose of Benedryl or Epinephrine? I have been thinking about that for awhile. Thinking about you all and praying for little Miss. Hope and her big day tomorrow.

  3. Hi Amy, We've never met but I follow your blog and think and pray for you all often. I can't imagine what you are feeling right now in anticipation of Hope's surgery. You have many people praying for Hope, and for your family. Thank you for sharing Hopes life with us. Hugs and prayers. xoxo

  4. Praying for you all and for every detail of Hope's surgery. God is with you and for you. And we're standing with you, too! Love from Toronto.

  5. hi there I read about you and this blog through a facebook site for pastor wives called Leading and loving it ..we are praying for you. I also have a Pastor and wife friend who had a child about 5 years ago with the same Heart defect ( hypertrophic left sided Heart ... ) and there son has done amazing Praise God . I would ask them if I could give them your name / contact info , if you wanted . contact me at

    1. oh and we are in Canada in southwest ont.