We are now at 18 mls an hour! This deserves celebrating as it is getting us closer to potentially taking this little lady home. We would love to have Hope at home with our family, even though we'd have to bring her back in a month for her heart surgery. I'm skeptical that she would be strong and healthy enough to stay at home, but I'd take one night at this point. Hope has had 2 spit ups and one throw up in the last 24 hours, this is minor in comparison to her history. We continue to hope and pray that she will tolerate her feeds.
The blood cultures came back and are officially negative! Praise the Lord for that result, as we don't have a line to run antibiotics. Unfortunately, the results also showed that Hope's magnesium levels are very low. They need to give her some supplements of magnesium, but don't have a line to put them into her blood. As a result, she will need to take them orally/through her feeding tube. This is known to cause diarrhea, something we are already battling. Please pray that this will not dehydrate Hope as we don't have a way of increasing her fluids. Many people have asked me if Hope could take probiotics to help with her stomach issues. In short, probiotics have a potential to kill Hope. The doctors are not even willing to consider them as the risks outweigh the benefits, I agree.
The most exciting part of today, was taking Hope out in a stroller for an outing. Now that she is off oxygen, we were able to walk around the hospital with her for 15 minute intervals. It felt so good to get out of her room and to stimulate Hope with some new sights. She absolutely loves it and stays wide awake the entire time. With all the excitement of going for a walk and the need to digest her food, Hope is napping more frequently throughout the day.
I got to be a part of Sadie's bedtime routine over Skype tonight. It's so nice to feel like I am still a part of her day from so far away. Thank you for continuing to pray for our family as we raise our girls, often in different cities. Thank you for continuing to pray for Hope as well, we have seen so much progress in the last couple of weeks. We still have setbacks, but overall we feel that every step forward should be celebrated and that God should receive the glory.