I called Shawn and shared the doctor's concerns. Usually choosing what is best for Hope comes naturally. Today, I was so tired of being away from my family that it was a bit more difficult to make the right decision. Thankfully, Shawn was stronger than I and encouraged me to stick it out for Hope and allow her to receive the care she needed. So we have made the decision to stay in Edmonton until further notice.
Hope should be going in on Monday for a CT scan. We're going to look at options for her that would not require general anesthetic. Please pray that the doctors will find a solution that is safer for Hope. The next steps will depend on those results. This delay is going to cause us to miss Hope's varices procedure on Tuesday in Calgary. As a result, Hope will be having that procedure here in Edmonton on Tuesday or Wednesday likely. We don't have specific dates at this point.
After meeting Dr. Kantor this morning, I felt that he could be an extremely valuable addition to Hope's care. I sat down and asked him if he would be willing to go through Hope's file and give me an outside perspective on her. He agreed to do this and spent the morning going through her file. In the afternoon he came back to speak with Shawn and me. (Shawn drove up in the morning with Sadie for the weekend).
Our meeting was extremely encouraging. Dr. Kantor feels that Hope is more likely to survive her childhood than many others have suggested. He feels that Hope needs to get out of the hospital environment and back into our home as soon as possible. Her growth is vital to her healing process and she simply does not gain weight while in hospital. This is a common complaint from families and is difficult to do anything about. This gives me a renewed strength to push to get Hope home. We have a lot of hurdles, but it is a gift to have someone believe in Hope and encourage us to keep pushing.
These delays and the thought of going through more surgeries without Shawn was really difficult. I finally did something I've been working very hard to avoid. I called my mom and asked her to come back. I feel bad taking her away from her life once again and having her drop everything. I don't like the idea of my dad coming home to an empty house either. Our family has been amazing through this journey and has been an incredible support on Shawn's side as well as my own. My mom will arrive tomorrow night and I find this very comforting.
Please continue to pray for our family. We have some wonderful volunteers coming to take some time with Hope tomorrow so I can enjoy Shawn and Sadie while they're still here. Sadie is still limping and will be heading back to the doctor next week. Please pray that her leg would completely heal before they need to re-cast her. It will be difficult to spend the week away from Sadie again, please pray that I get home before next weekend! If they find something serious with Hope's aorta, they may need to do another open heart surgery. I need a serious dose of strength to get through that - I'm praying that is not the case.