I was happy to not walk through today alone. My mom's flight was delayed even further last night and we ended up in bed at 2:15am! The alarm at 7am was not a happy sound to either of our tired bodies. Hope is always so happy to get back into my arms each morning, that makes the lack of sleep worth it. Hope was taken down for her CT Scan in the morning and did fairly well through it. She was able to go through it with no sedation! We had someone come by the hospital to snuggle little Hope while we went back for a short nap in the afternoon to find the energy for the rest of the day. In the late afternoon the GI doctor came to let me know that Hope will be having her Varices procedure tomorrow in the late morning. Please be praying for Hope as she goes through this procedure. Pray against any bleeding complications, reactions to the anesthetic or difficulties waking up. Thankfully she is going to be in the hands of an anesthetist that is very familiar with her and all her quirks.
Around 4pm the cardiologist came to talk with me. I knew things weren't going to be easy when he asked me to follow him to a more isolated location to talk. The CT Scan showed a few kinks in Hope's aorta. These will need to be surgically repaired and can not be done in the cath lab. Tomorrow the surgeons will discuss Hope and decide when to do this. The cardiologist felt that it would be sooner rather than later. He mentioned that it could even happen in the next few days. Hope will need to have her heart completely stopped for the procedure and will be on the heart and lung bypass machine. This is so discouraging.
The logistics of it all stress me out on top of my little girl needing such an invasive procedure. Shawn will obviously be coming back for the open heart surgery and will need to figure everything out with work. Sadie now has a Nanny and we have committed to pay her for the next 6 weeks. As a result, if we bring Sadie to be with our family, we'll still need to pay her. Sadly we won't be able to get 40% of it from the government like we usually do if Sadie is not actually in Calgary. Our home care nurse was set up in Calgary and spending 4 nights a week with Hope. It takes away the hours from her as well. I have no idea how long we'll be here and the thought of it being more than a week or two is exhausting. How long Oh Lord?