Thursday, 13 September 2012

It's a Date!

Today we finally got a date for something!   Hope has been booked into the OR for her hernia repair on September 24th, no set time at this point.  The doctor spoke with us today and said that they will repair both sides of her groin to be sure the hernia doesn't happen on the other side.  We have 11 more days to simply sit with Hope and wait for that surgery.  Nothing should really happen until then and things should be fairly mellow around here.

I continue to be amazed at the mistakes that go unnoticed and wonder how many I have missed.  I was standing next to Hope's bed as the nurse prepared to deliver her 8pm meds.  I happened to notice that her needle of blood thinners only had 7 units inside it.  Hope has been on 9 units for quite some time and clots very easily.  I told them I wanted a doctor paged and someone to speak to me before that was given to Hope.  I don't want something important to clot off because of a mistake.  The clot doctor spoke to me over the phone and explained that on September 4th when Hope's blood was tested, her levels were too high.  They simply forgot to change her dose before today and apologized as it could have caused a major bleed.  Seriously?  That could have killed Hope and instead of coming to see her, they called in an order to change her meds 9 days later, and never bothered to examine her?  I was unhappy to say the least, you seriously have to be on guard at all times.

We have been so blessed by the outpouring of love on our family.  Someone dropped food off at the RMH for us today, I never even heard who it was...but thank you!  Our neighbour is working hard to kill all the wasps that live in the cement stairs of our home in Calgary, that can't be a fun job.  Friends of ours that live on Maui have moved their family here to Edmonton temporarily to help us care for Sadie each day, who would leave Maui for Edmonton?  We have received so many encouraging words and feel truly overwhelmed by the immense love and care that comes our way.  For all the times we fail to express it fully, Thank You!

For those that are not on Facebook....
A friend also started this sign up sheet for prayer.  We are trying to organize a week of constant prayer for Hope as we ask God for a miracle in her life.  Please feel free to sign up if you'd like.


  1. I've come across your blog through a friend on Facecbook and was touched personally by your family's story and the faith you have in God. My sister-in-law also has a daughter with HLHS born in 2011. She has had two of the surgeries and is now awaiting a heart transplant as her heart can't be fixed by the third surgery. I am praying for Hope and her family!

  2. I'm so glad I found your blog and just wanted you to know that I am praying for your little girl!!!