Today was the third day in a row that we've had Hope at home with us for a day pass. Shawn went to the hospital this morning and picked her up to bring her home. Sadie was really excited to see her sister and have her home for the day. It was definitely the best day we've had with Hope at home. She was a bit happier and we even managed to get a few smiles out of her. She continues to throw up, although they are spread out and the volumes are manageable.
Sending Hope back to the hospital at night is getting more difficult. At 9 pm, no one feels like leaving the house to do anything. Hope is usually settled with one of us on the couch and it feels wrong to shove her in a car seat and take her back to a place that is not her home. We are looking forward to having her at home, although we have been reminded of how much work that is over the last 3 days.
The doctors are now recommending that we introduce meat into Hope's diet. They want us to feed this to her orally. I have no idea if this is going to work, but we'll give it a shot tomorrow as it would give her the protein and calories she needs to stay on the low calorie food that she appears to be tolerating more. Hope is gagging quite often and clearly on the verge of vomiting. I imagine that as soon as I put something in her mouth, she's going to gag and vomit immediately. We'll give it a try and report back to the doctors. Her first taste of meat will be blended Easter turkey.
We were even brave enough to leave the house with Hope today! We took Hope to her Oma and Opa's house to hang out for the afternoon. She just watched everything that was happening and even had a nice nap on their couch. She'll hopefully be there tomorrow for Easter as well. Last year for Easter, Hope was just a newborn in the NICU at the Stollery. I would have never imagined the year we've had since then.
Day passes are giving us a taste of what it feels like to be together as a family once again. We are praying that this becomes our reality really soon and we're able to leave the hospital for good. The only thing holding us back is weight gain. If Hope could gain weight on the feed she's taking with the vomiting, we'd be good to go. She's going to need more calories in order to stay out of hospital. I can only pray that she shocks us all and loves to eat meat!
This Easter Bunny needs to go and hide some eggs!