Today we celebrate another first in Hope's life, her first tooth! It is just poking through and it's always fun to celebrate "normal" things that she does after all the "not so normal" things she does. I'm hoping it explains the fevers and diarrhea but the doctors don't think that's the cause. Although, Sadie always had runny poops and fevers with teething so Dr. Mom is still not sure, but thinks it has contributed at least.
Hope has been doing something a little different for the last two days. She will randomly drop in oxygen saturations from the 80's to the 50's. This is not normal and is a true (accurate) reading on the monitor. Hope will likely have another echo to see if something in the heart is "shunting" or kinking to stop to the blood flow. This may be Hope's way of forcing them to do a heart cath. Please pray that this either stops immediately, or that whatever is causing it will show up clearly when they go looking for a source.
Today was a nice day with Hope and we were able to spend a lot of time there as a family as well. Sadie is such a good girl and does fairly well at the hospital. Our nurses were fantastic and Hope was happy most of the day. We cherish the time we are able to spend with our little ladies, even if it has to be in the hospital.
Please be praying for our doctors as they make important decisions about Hope's next steps. Today they decided to up Hope's feeds by 1ml every 48 hours. If this is successful, it will take Hope until February to get to her full feeds. That is assuming we don't run into any problems or set backs. We are currently at 7mls an hour and Hope seems to be tolerating it. As for the PICC line, she continues to cry when any meds are put through it. I'm not sure it's going to last until February, we truly need a miracle. Good thing we believe in a God of miracles!