I am exhausted. I've had sleep, I take breaks and our support network is wonderful. My emotions have taken a huge hit this week and it has completely wiped me out. We have been told to get ready because Hope is leaving in the morning. Then we were told she couldn't go until the 27th, then the 24th and now we have no date.
Today a swab that was taken from Hope's nose 4 days ago, came back positive. Hope has the common cold virus. They will not take Hope into the cath lab with a cold, so they have cancelled her heart cath. Until we get a negative result, or Hope's diarrhea stops, we won't get a new date for the heart cath. We will be here in Calgary at least until the 26th, but likely longer. This is so frustrating when we know that Hope needs to have this test.
Hope has spent the last two days very uncomfortable. She rarely sleeps during the day and spends her awake times very fussy. After 8 hours of straight fussy, I just have to get out of the hospital. I plan to take a lot of breaks this weekend, it's the only way I'll be able to continue like this for another couple of months. I used to be able to spend 24 hours straight at the hospital with Hope. Now I begin to lose my mind after 8 hours. I just keep wondering, "How long oh Lord??"
Although I am exhausted, I am also very blessed. Numerous complete strangers have come to the hospital to sit with Hope while we leave to regroup and renew our strength. There have been little reminders that we are not alone and that so many people are walking with us. Thank you for continuing to pray.