Sunday, 30 December 2012

Wisdom Please

This morning we had the blessing of attending our church.  The pastor spoke about wisdom and I was struck by something.  I ask others to pray that the doctors would have wisdom as they care for Hope and I pray this myself.  I often fail to pray that God would give me wisdom.  I want to commit to praying that God would give Shawn and I wisdom as we advocate for Hope.  No one knows Hope as well as we do, and we need wisdom as we fight for the best care for her.  It's a good lesson, something we should all be doing more.

Hope had another good day.  She continues to have a lot of health issues with long term consequences.  We celebrate the fact that day to day, she is happier and is enjoyable to spend time with.  It does not mean that we do not continue to have a lot of hurdles ahead, as we live with the reality that Hope is still in serious condition.  It does give us an opportunity, however, to not think about it constantly though.  

We have started trying to give Hope water by bottle in very small amounts.  She is doing so well with it and we are excited to start trying some formula tomorrow.  If we can get Hope eating even a little by mouth, we can move away from the liquid nutrients at a faster pace.  I think the day Hope is finally off of these liquid nutrients, I'm going to celebrate with a cupcake!

Tomorrow is the last day of 2012.  We actually have a reason to celebrate the New Year this year.  I usually care very little about New Years Eve and am often happy to sit at home with a movie and to go to bed early.  This year I find it slightly more exciting, Hope survived 2012 and is going to see 2013, this is a reason to celebrate.  It's another milestone in her life, and once again we praise God for this miracle.


  1. I pray regularly for you and Shawn to have wisdom in advocating for Hope, and for the doctors to have wisdom in treating her. God answers prayer. Give thanks for the wisdom He gives you in answer to my and others' prayers.
    Melanna's mom

  2. It's a God thing-we have been praying for you nightly and part of our prayer is for you to have peace, strength, energy and wisdom, as well as insight for the doctors. We will continue to pray! Happy and blessed new year to you all

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