Hope remains oxygen free! It's been over 24 hours now and she is doing so well. After some issues with vomiting yesterday, Hope's NG feeds have been dropped to 11mls an hour. Her NJ feeds are up to 6mls an hour. That gives us a total of 17mls an hour, our final goal is 24mls. Hope will reach this goal at 10pm tomorrow, if all goes well. That means, we could be finished with TPN (liquid nutrients) by tomorrow night! The doctors plan to leave the PICC in for another 24 hours after the TPN finishes and hope to pull the line on Friday. I can hardly believe this might happen, but am hoping it does.
Today I asked the cardiologist what we needed to accomplish to get out of the hospital. Once Hope is receiving 11mls by NG and 13mls by NJ, she'll be at full feeds. Once this happens, we'll slowly begin to move the NJ feeds into NG feeds. Once Hope is receiving all 24mls by NG feeds, she can go home! This could take some time as we have really struggled with feeding issues. Please pray that Hope will surprise us and do amazingly with her feeds. We are so excited to one day have her home and are anxious for this to happen.
All of Hope's blood tests came back negative! They have no explanation for the fevers, but we are off isolation. I'm praying the fevers stop and we did not somehow miss something with Miss Hope. Thank you all for continuing to pray for a miracle, she continues to amaze the world each day with her steps forward. Please be praying for the clot on the end of the PICC line, this could be a major issue and we are praying that God would take away the risk.