Tonight I do not feel like writing. I guess it's a short update with just the facts kind of night. It wasn't a terrible day, I'm just feeling lazy.
Hope has a dangerously low magnesium level. This proves that she is not absorbing her feeds and TPN (liquid nutrients) will be running until they can find a way to make her absorb food. The infectious disease team said that if they can't find a source for the fevers, they may do a spinal tap. The cardiologists no longer agree about whether or not to do the cath and we may not find out until Wednesday what they've decided. Hope is throwing up, she can't absorb the food so it comes back up. Hope has a terrible diaper rash from constant diarrhea that they can't explain or stop. Hope will now have blood work much too often to check her magnesium levels after getting infusions of it.
Not a great day for Hope but she's staying strong and we had some nice times together today. It's a Monday and a care shift day as well. We got a new cardiologist, GI specialist and Pediatrician on rotation this week. Should be interesting, maybe new minds will have some new ideas to make this little lady more comfortable.
Please continue to pray. The doctors need wisdom and Hope still needs a miracle.