That's right folks, we're still at home and were not re-admitted. Praise the Lord!! We've had a few issues with the feeding tube, but have been able to keep it in and continue to give her meds and feeds through it. Please pray that this tube does not kink or get stuck against a wall again. We like to have Hope at home, even with the sleepless nights!
Today a nurse came to the house to do our assessment for Shawn's insurance coverage at work. She was pretty sure we would be approved, but we won't get an answer until next week. We're hoping to be approved for at least a couple of nights each week. I can't imagine sleeping for 8 hours straight at this point! When I got up last night, I would sit in Hope's room and push snooze on my cell phone every five minutes. I was actually falling asleep between the alarms! That shows you how tired I was, as I couldn't stay awake for a full five minutes to watch the feeding tube.
Hope was pretty high maintenance today. It's hard to get things done at times. Shawn's mom spent the day at the house with me. It allowed me to get some laundry done, organize the pile of mail on the counter and write some letters of my own. It felt great to have a more 'normal' day. Hope was wanting to be held most of the day, so Oma took a shift of cuddling while I did some house work during Sadie's nap. I should have been sleeping, but eventually you do have to clean up your house.
This evening, as Hope slept next to me, I worked on her scrapbook of Hope notes. We have almost 2 scrapbooks full at this point. I'm willing to buy a third book if you're still planning to mail your Hope note. I would love to receive them, as they really encourage us on those rough days and remind us that we're not alone in this. They are such a testimony to the power of prayer. Feel free to take a look if you're ever at our house.