Friday, 25 May 2012

Home Sweet Home!

It's true, we're home with Hope after 7 weeks and 2 days of her being in the hospital.  It felt surreal to leave the hospital, not have monitors on her and no nurses!  I stopped at the hospital pharmacy to pick up all of Hope's drugs, she has a lot of them.  It was a bit frustrating as they kept telling me that they needed 24 hours, but her first dose was due in only 3 hours.  I knew they were just being lazy and felt annoyed that they wouldn't just get them for me, I really wanted to go home.  I was already very bold before this experience with Hope, but now I'm a lot worse.  There was no way I was leaving that hospital without all the meds I needed.  They got them all together for me in 45 minutes, I wonder what they do for the other 23 hours they needed?

At 1:05pm I pulled out of the hospital parking lot with Hope in the backseat and headed for home.  Shawn surprised me at the house, it was incredible to have him home for this exciting moment.  We started out with a bang, I arrived home at 1:25 and Hope was due to eat at 1:00.  We had to rush around and set everything up for her first feed at the house.  We spent the first while making schedules, taping instructions around the house and trying to get ahead of all the work.

Tonight will be our first night taking care of the night feeds, we're going to miss those nurses!  I'm sure this will be the hardest part of each day, please pray for us.  Hope is also quite grumpy after each feed, not sure if it's a result of gas or the way we're giving her the food.  Please pray that we have wisdom as we decide how to feed her and make her the most comfortable.

We'll keep you posted as we find time through the weekend.  Thank you for walking with us to this point, this is a major step in our journey.  Now we just need to pray her through until her second surgery, even the common cold could be deadly to her right now.  Shawn has already started referring to me as a helicopter mom, it's true too.


  1. I think at this point, you are allowed to be a helicopter mom!!!

  2. Praying for you! Hope that your night was ok, am sure you are nervous, and don't want to do anything wrong. You will be great!
    Is Hope on breast milk? If she is grumpy, it might be that when you pumped you were very anxious, and she would get that through the milk that you have pumped.
    Don't worry, as God has brought her this far for a reason. Heb 12:1-3" Let us run with endurance the race that is set before us, fixing our eyes on Jesus, the author and perfecter of faith, who for the joy set before HIM endured the cross, despising the shame, and has sat down at the right hand of the throne of God."
    When we are in a situation where Jesus is all we have, we soon discover he is all we realy need!!! ;Gigi true.
    You and Shawn have already felt that and so will continue to pray for the Love of God to fill your home, and give you all the strength to continue this journey of HOPE!!!
    Love to all!

  3. The "pharm boys" better watch out for "heli mom" next time!Way to go Dr. Amy -you advocate and make things happen on a new level. You have been well trained, equipped and organized for this transition , so we just need to pray for the naps!! Hoping you can close your eyes during the day while Sadie and Hope have their nap time. Let the other stuff wait for helping hands.
    Love to all