Our baby has been diagnosed with HLHS (hypoplastic left heart syndrome). We believe that God is in control and will use our situation to glorify his name. As we take this journey, we invite you to join us on our knees and pray for a mended heart.
Monday, 30 April 2012
Another step in the wrong direction
We are in need of some extra prayers today. Hope is having a rough day and doesn't seem to have improved overnight. Yesterday she began to drop in her oxygen levels and would turn blue, this has continued today and is of great concern. An echo of her heart was done this morning and they noticed fluid around her left lung as well. Although the heart is still looking strong, there is concern that her heart will be over worked with all the added complications. She is currently having an ultrasound to see how much fluid is there. Once they have a better idea of what they are working with, a decision will be made about whether or not to give Hope a chest tube. The tube would be used to drain the fluid and would need to be inserted in the OR. We're not thrilled about the idea of our little girl returning to the OR, but are also wanting to see her get better and are willing to do what is recommended. The doctors showed great concern for Hope during rounds and we're feeling anxious about this all. Please continue to lift us up in prayer, specifically Shawn as he is at work and feels very far away. If Hope needs to go into the OR, we may go and get him to bring him here as well.