Saturday, 25 August 2012

Adding Some Tubes

Hope is not doing well, we seem to be heading down hill now.  I still feel very light headed and like I need to lay down.  I'm at the hospital tonight, I honestly think I might get a better sleep.  Last night I was so scared that I hardly slept.  I'm sure you assume that I was worried about Hope, but I was actually scared because I'd called 911 on a domestic disturbance happening across the street!  Could life get any more interesting than it already is?  I got to bed late and was scared, being home alone.  So tonight I'll sleep at the hospital and try to sit up when Hope is fussy.

Hope was put back on oxygen this evening, she couldn't keep her oxygen levels high enough.  This basically confirms that we won't be going home at all this weekend.  At this point, I'd be shocked if we made it home with Hope before she's presented on Tuesday.  Part of me wonders if we'll be going from this hospital to the one in Edmonton directly.

I wish I could sound upbeat and optimistic, but I still feel exhausted and totally overwhelmed.  Please continue to lift up our family.  We also need you to pray for little Holly this week, they've been re-admitted as well and are in the ICU.  These little girls are fighting a tough battle right now.


  1. hang in there Amy. when we are at our weakest HE is at His strongest. you have been and continue to be such an inspiration. you are loved.

  2. My heart goes out to you Amy, this must be such a scary and stressful time. I will keep on praying for your special little gift from God as well as you and your family and Holly and hers. I am sending you my love. Debbie from Ontario.

  3. Sending love and prayers from WA state. lifting you, and your family up, my precious friend. And Holly and her family as well. Loves, Honesty

  4. Praying for you all as this is a up hill climb! God is BIG!! He can do anything, so as we pray we pray with boldness, a heavy heart, and a heart of excitement to see what He does!

    Why are they waiting for tuesday, when your little girl is sick today, and has been for the past few days. Canadian health care is good, as it is free, but in this situation, i do not understand why they have not taken her for her MRI that she is booked for on tuesday, and do it today?

    I am frustrated with you. I also know that you are doing all that you can. You have been Hope's care advocate, so do what you need to do. If God lays something on your heart to say, then say it!
    You are very strong, and God is sure giving you all the strength that you need.
    Sorry for all that you are going through....and the call you had to make concerning your neighbours.....
    Praying for you we wait together. You are not alone, and I am sure you know that. You have your wonderful Savor, and also a lot of people praying for your family.
    With love!

  5. I feel so awful for you... I feel guilty for wallowing in my own miseries while you insure all this awfulness. Big hugs and many prayers.

  6. A few nights ago God kept on waking me up with you and Hope on my heart. He didn't wake me last night, but I'm sure He woke someone else. You have a cloud of praying friends around you, and one of my prayers is that you feel our love and concern! Praying for one of Hope's excellent team to say, let's get off the pot and move this girl to Edmonton, get the MRI, get her fluid build-up corrected, and build her up enough that we can do the surgery that will give her a better quality of life with this wonderful family! Honestly - I get so impatient. I don't know how you do it Amy, but looking up to our Creator, knowing He knows best! HUGS!

  7. I'm so sorry you have to be back in the hospital, and I'm sure Hope is comforted feeling your presence there with her. I am keeping you and Hope and your family and Holly and Holly's family in my prayers. Amy, to say your strength and devotion are an inspiration is an understatement. Please know how many lives you are touching and changing as you help Hope fight for hers. I read every single one of your posts last night and I'll be following your journey in real time from here on out. Sending love and strength to your family. xo

  8. I continue to be amazed by your stength. I know you don't feel strong, but you are! I don't know you personally, but as I keep reading your blog I am overwhelmed by your strength. Please know that your story has spread far and wide and many are praying for you! Blessings!