The doctors came to see Hope today and have decided to let the doctors in Edmonton decide what to do next. Hope will be presented to the Edmonton Surgical board on Tuesday. At that time, they will decide if they want to tap her stomach to identify the fluid, do a heart cath to check on her pressures, or book her Glenn (second surgery) to see if that will resolve these issues. Until Tuesday, we wait.
Hope was put onto continuous feeds today as her tummy is not tolerating her food well. She will stay on continuous feeds until morning. They will then attempt some bolus feeds and see how she does. Once she is eating well and tolerating it, they may send her home until they decide what to do next. This could be interesting as my "bug" has completely wiped out my milk supply. I'm totally dried up now and have 2, maybe 3 weeks of milk left in the freezer. We'll need to begin introducing formula and this could throw Hope's tummy off. Please join me in praying that Hope will do wonderfully through this transition and it won't make her uncomfortable.
As for me...I've developed a system. I have a book in the bathroom for the time I spend there. I have a computer, the tv, my cell phone and home phone in the family room. I spend my time on the couch or the toilet. I'm pretty sure I should stop trying to eat, it never lasts long and I tend to be sicker. I'll try a liquid diet and see how I do I guess. I'm worried about my run training and falling behind. It's already a stretch for me to run and being a week behind is going to be tough...I'm going to need a miracle to make it to the finish line!
Thank you for caring about my gross digestive problems and my sweet girl. Shawn is enduring the hospital, although he has developed a lot of respect for me. He can't believe I've done this so much in the past, he's miserable. If you're healthy, he likes visitors and non-hospital food. We're lucky his employer has been so patient with our family through this craziness!
|Feeding the ducks while we wait for Hope to finish her MRI|
|Holding Hope after the MRI, before the reaction started|
|Laying in Hope's crib in the ICU|