Tuesday, 14 August 2012

Could be a long haul....

We don't have a lot of answers or new things to report.  To be honest, they didn't do a whole lot today and we spent most of the day waiting in our room and trying to keep Sadie busy.  Hope is pretty sleepy and certainly not feeling like herself, she likes to just sleep in someone's arms and be held as often as possible.  We did another Xray this morning and there were no changes in the images.  Overnight, Hope's stomach grew even larger and she gained 170g.  That is not a healthy weight gain overnight as her average is 20g!

Today Hope has received a large dose of lasix and they're trying to see if they can get some of the fluid retention to come down.  We were told that an MRI will not happen this week as cardiac MRI's can only be done on Tuesday and Wednesday, tomorrow the machine is down for upgrades and repairs!  We don't want Hope to be put to sleep twice, so we'll have to wait until at least Tuesday next week for her MRI to be done so that they can look at both her abdomen and her heart at the same time.

Tomorrow morning we're going to see someone from GI to get a consult on what they feel her stomach issues could be caused by.  We'll also take a look at how well the lasix have done on the swelling and we'll go from there.  It looks like it's going to be a waiting game, and they've said we may have to stay until after the MRI can be done.  This could be a long haul at the hospital and I'm not very excited about that fact.  I could use a new DVD series to watch if anyone in Calgary has one that I might enjoy to distract me.  Thankfully my mom is here right now and able to help out with Sadie when Shawn heads out to work.

Please keep praying for Hope as there is clearly something wrong and we don't have any clear answers at this point, which limits their ability to treat her.  Pray for us all as we wait, sometimes patiently but not always, to find out what's going on with our girl.


  1. Your precious Hope and your family are in my prayers. I know this is quite a journey but God is with you every step of the way!

  2. Praying for you all. You and your family are constantly on our minds.

  3. Hi Amy,
    I have the first season of parenthood I could drop by the children's if you'd enjoy that show. Let me know!

  4. You have a beautiful family - praying for all of you!